I had to take prednisone for it but have fought it for over 32 years by being physically active and weaning off the prednisone as much as possible. As of now I have been off prednisone for two years completely and have had a few flare ups which cause eye drooping or double vision. I was always a fitness buff but became even more so after the diagnosis because of the fear of the prednisone causing severe side effects. I have not suffered much that I can tell but I get tested for bone loss every two years or so. When my vision gets very bothersome I patch one eye and you should see all the women smile at me.